Making Change, One Heart at a Time | Kristen DeAndrade
As part of this video series, Hero Philanthropy made a $2500 donation to help further the Little Legs Big Heart Foundation’s mission of providing support, resources, and hope to families and individuals living with achondroplasia and other skeletal conditions. Kristen DeAndrade turned adversity into advocacy and created a vibrant community that connects individuals and families …
Shaping the Future of Achondroplasia Care | Kristen DeAndrade
In part 2 of My Hero 360’s conversation with Kristen DeAndrade, she shares why she created the Little Legs Big Heart Foundation, an organization dedicated to building a stronger community for individuals living with achondroplasia and skeletal dysplasia. By focusing on advocacy, mental health, and education, the Foundation is working to improve patient care and …
Personal Choice Is Not Controversial | Kristen DeAndrade
In this My Hero 360 episode, host Kerri Fitzgerald sits down with Kristen DeAndrade to share her experience living with achondroplasia, the most common form of short-limbed dwarfism. Kristen talks about her decision to undergo limb lengthening surgery at a young age and subsequently navigating criticism from her own community. Kristen discusses why personal choice …
This Is the Most Common Form of Dwarfism | The Achondroplasia Series
Welcome to our video series celebrating 2 powerful voices shaping the conversation around achondroplasia, a condition that affects nearly 4 in 100,000 people. You will hear from passionate advocates who have turned their lived experience into lasting impact. From creating a Foundation focused on the skeletal dysplasia community to shaping the way society views people …
An IBS Story: A Long Road Back to Full Strength | Deb Caton
In this episode of My Hero 360, Kerri Fitzgerald speaks with Deb Caton as she shares her decades-long journey with irritable bowel syndrome (IBS). In 2020, she was hospitalized at just 80 pounds due to an IBS flare-up and had to rely on a feeding tube for several months. Deb discusses malnutrition, food anxiety, and …
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Making Change, One Heart at a Time | Kristen DeAndrade
As part of this video series, Hero Philanthropy made a $2500 donation to help further the Little Legs Big Heart Foundation’s mission of providing support, resources, and hope to families
Shaping the Future of Achondroplasia Care | Kristen DeAndrade
In part 2 of My Hero 360’s conversation with Kristen DeAndrade, she shares why she created the Little Legs Big Heart Foundation, an organization dedicated to building a stronger community
Personal Choice Is Not Controversial | Kristen DeAndrade
In this My Hero 360 episode, host Kerri Fitzgerald sits down with Kristen DeAndrade to share her experience living with achondroplasia, the most common form of short-limbed dwarfism. Kristen talks
This Is the Most Common Form of Dwarfism | The Achondroplasia Series
Welcome to our video series celebrating 2 powerful voices shaping the conversation around achondroplasia, a condition that affects nearly 4 in 100,000 people. You will hear from passionate advocates who
An IBS Story: A Long Road Back to Full Strength | Deb Caton
In this episode of My Hero 360, Kerri Fitzgerald speaks with Deb Caton as she shares her decades-long journey with irritable bowel syndrome (IBS). In 2020, she was hospitalized at
2’10” and Ready to Conquer the World | Monica & Robert Quarles
In this episode, Kerri Fitzgerald sits down with Monica and Robert Quarles, who share their daughter’s journey with Alagille syndrome. Upon welcoming Miracle to the world following an IVF journey, …
Talking Rare Disease, But Make It Cute | Ashley Brooks
In this episode, Kerri Fitzgerald speaks with Ashley Brooks about her rare disease journey. Ashley first learned about generalized myasthenia gravis (gMG) during her studies in college and later learned
The Next Chapter for Hypoparathyroidism Patients – How You Can Help | Hypopara Series: Part 8
Thanks for following this Hypoparathyroidism Awareness Day video series. We invite those listening to stay connected with the HypoPARA Association by getting involved with the organization, listening to its podcast,